Friday, March 29, 2013
Wednesday, January 23, 2013
A different example of an improperly named disease is "rheumatoid arthritis". As my friend Kelly Young has mentioned on her RA Warrior blog many times, "this is not your grandmother's arthritis". It has little to do with osteoarthritis, which affects many older people, and far more to do with systemic autoimmune disease leading to the destruction of many body systems. I've posted before about RA on this blog (largely RA genetics; see archives), but my goal here instead is to inform the greater healthcare community of progress in addressing the nomenclature problem that has stymied individuals (largely women) with RA.
Toward this end, yesterday the rheumatoid patient foundation (RPF) provided a press release announcing the "first awareness day for rheumatoid arthritis"; February 2nd was established as "Rheumatoid Awareness Day". You can read more about the rationale behind the choice of this particular day at Kelly's blog post. In the respective RPF banner, please note the missing word "arthritis"; that was on purpose. The key point is to create better awareness in the healthcare community that rheumatoid disease (like PCOS mentioned above) has been inadequately addressed by the medical establishment, and a misnomer disease name is simply a reflection of this inadequacy. To obtain proper healthcare, the rheumatoid disease patient community has banded together around the RPF, and now the establishment of Rheumatoid Awareness Day is an official step toward the goal of achieving necessary recognition similarly to what the PCOS disease community has accomplished. Perhaps the sorely-needed official name change for rheumatoid arthritis is just around the corner.
Tuesday, January 8, 2013
WE ARE CHARGED WITH PREPARING OUR MEDICAL STUDENTS TO BE LEADERS IN THEIR FIELDS. ARE WE LIVING UP TO OUR RESPONSIBILITY?
Wednesday, December 12, 2012
As part of my role on the Advisory Board of the Mayo Clinic Center for Social Media, I provided a ~ 400-word essay for the following book,newly-released in 2012:
The goal of this project, and the book, was to tap into the combined expertise of MCCSM Advisory Board members to address the following question: "What's your best advice about getting started with social media for me or my organization?"
In keeping with a "personalized" theme, the mission was to express in everyday language, from our own particular perspectives, whatever advice we felt was appropriate for someone just starting to look at social media as a professional tool. In my case, Twitter was THE key foot in the door into the world of social media. Below, in quotes, is my ~ 400-word essay you will find in this book.
Elsewhere in the book you will find essays on blogging, Facebook, YouTube, Pinterest, social networking, legal issues in social media (by Dan Goldman, JD), and a number of other key topics you won't want to miss.